My shining star

My shining star

Sunday, 19 October 2014

The Transplant list and Christmas card club - finally!

Hello lovely blog friends - thankyou so much for your kind words on my last post - I have more news today - Shaun went on the urgent transplant list yesterday - we had a meeting with the transplant coordinator and she explained the procedure and the likely timings too. It seems that the average wait on the urgent list is about 6 weeks but it could be anytime from now. Shaun is apparently in a good strong position from his blood type and tissue type. We now have to sit and wait - and meanwhile Shaun can get stronger. The immunosuppressant  drugs that he will be on after the transplant sound pretty awful but its the price to be paid for a chance at life. The average heart transplant patient lives 13 years - but there are people who have had transplants up to 30 years ago so we just have to wait and see what the future holds for us. Its very scary and I think there's an emotional rollercoaster ahead - but we'll ride it.

Onto card stuff - there's a new theme for the Christmas card club today - I'm hoping its a christmas deer because thats what I did! Its CAS and my first attempt with my spectrum noir pencils - I think I have a lot to learn!


Big hugs all!

(first use of spectrum noir pencils)

Rachel xx

34 comments:

  1. Rachel, what great news. Now from a mum of a kidney transplant patient, which is I know not the same as a heart one. But just to say you are right about the immune drugs, yet as you say they are the chance of life, Chris our son has had two transplants and he has good times and bad, but he works has a lot of fun with his two little girls, he has to take the drugs that give him that life - a small price to pay in his eyes. You are going on a very emotional journey with it's up and downs, so again you have to look after yourself to be strong enough to manage. If it works out about the 6 weeks wait, you should have Shaun home by Christmas and what a wonderful present that would be. Love today's card, but most of all just the wonderful news was lovely to read. Big (((( hugs)))) to you all. Hazel xx

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  2. Darling Rachel, I pray for the best and successful transplant ever for Shaun. Yes the roller coaster ride will be hell at times but the end result and love will be worth it. [I am on a rollercoaster with my dying dad so know what you are up for] Love and prayer fixes it all, and we all have plenty of that for you....Look after yourself and family as well as you will need to be the strongest of all and take each day as a blessing...xxx

    your card is lovely too...xx


    The Journey is the Start



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  3. Oh Rachel this is good news that Shaun is on the list and hopefully won't have too long to wait. With the love of his family behind him he has made an amazing recovery from the desperate situation a few weeks ago so he is obviously a fighter. Stay strong and firm in your belief and I am sure you will be able to face what lies ahead and meet it head on. You have been through a terrible time the last few weeks but I can always feel your optimism and cheerfulness coming through, you are a credit and I am sure your family are all so proud of you. Big hugs to you, Lucy, Penny and Shaun!! Your card is fab too!!!! Big Hugs, Susan x

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  4. Beautiful card Rachel. Sorry to read about Shaun, hope everything goes well. Hugs Sue x

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  5. Hi Rachel, such good news that Shaun is strong enough to go on the transplant list....I do so hope everything goes well and it's successful for him. You are all in my thoughts and prayers....Take care dear lady, thinking of you all. Lots of love xxxxxx

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  6. Meant to say.....your card is lovely too...xxxx

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  7. Such good news for Shaun, hope the wait isn't too long. Cute card too x

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  8. Wonderful card Rachel, so pleased although very nervous about the news, will see you soon

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  9. Rachel, it will be a rollercoaster but you are clearly both strong and this is just the chance that Shaun needs to get home to you and your beautiful girls! I am so happy for you. Take care and keep strong my friend. Huge hugs, Anne xxx

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  10. Oops, your card is beautiful, that is such a sweet image! xxx

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  11. Gorgeous card Rachel, a sweet image and fabulous CAS design.
    I am so pleased that Shaun is now on the transplant waiting list and hope the wait isn't too long. It sounds like Shaun is amazingly strong and positive and I am sure he will continue to make a good recovery. It must be so reassuring to know that he has your love and support and I bet he cannot wait to get back home to be with his family.
    Please try to take care of yourself too.
    Sending you big hugs
    Sue xx

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  12. Great News that Shaun is getting a transplant and hopefully it can be done pretty soon. I so admire how you are dealing with this as it all takes great courage. Love your card Rachel, colouring is fabulous. Look after each other. Hugs Rita xxx

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  13. Brilliant news about the transplant list and hope it's sooner rather then later -best wishes to Shaun but you take care too-love the CAS card
    Carol x

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  14. Brilliant news for the transplant, hopefully the wait won't be too long. Love the cute CAS card.
    Lorraine

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  15. This is gorgeous,fabulous design. Fab new for the transplant.xxx

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  16. I am so happy to hear that Shaun is getting better day by day and that he is on the urgent transplant list. I am loving your card and wish you all the very best for the future.
    Big Hugs
    Linda xxx

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  17. Hello Rachel, it's great news that Shaun is now on the list and I hope the wait won't be long for him. He has remained very positive and strong, which is great and it with your love will see him though it all, roller coaster as you say though.

    Lovely cute card, love the image, and your colouring is super, hugs to you all, Kate x

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  18. Such marvelous news (but yes, it sounds very scary & emotional as well) & so thankful for you that things are moving along with the transplant. Pray it will be sooner so you don't have to wait long. God be with the both of you, as I know He will. Your card is darling & delightful...can't imagine how you have the time & energy to create this with all that's going on. But TFSharing it, and your news too. Hang in there. Big Hugs to the both of you. Happy Sunday.

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  19. Hi Rachel fab card but your news is marvellous! don't forget to take care of yourself because you will need to be strong...will be thinking of you all lots of huggles Sue xxx

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  20. Great news Rachel and hopefully you'll manage to get Shaun home in time for Christmas. Love your cute card, it's a fabulous image. Carol x

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  21. Your card is adorable Rachel, such a fabulous CAS design.
    I can't believe how well Shaun has recovered in the past few weeks Rachel and I can't imagine the emotional roller coaster that you must all be on. I do hope Shaun doesn't have to wait long, but he is getting stronger by the day and that can only help. You are all in my thoughts, make sure you take care of yourself as well.
    Pauline
    x

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  22. Your card is gorgeous Rachel but I am more thrilled about the news for you both. I know things are never straight forward but this is certainly a step in the right direction for you both.

    Lots of hugs to you - and I really do like your cute card!!!

    Sue Pxxx

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  23. oh Rachel this is good positive news and as you say gives Shaun time to keep getting stronger ....I keep you all in my prayers....
    so glad you were able to relax for a little time to craft and make this lovely card ....take care xxxxxx

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  24. Hi Rachael
    This is wonderful news....you must be over the moon.... You seem to be coping so well.... Your card is so cute lovely image....
    Sending you both hugs ....
    Sylvie xx

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  25. Life is all about roller coasters! Thankfully he's on the list now, thoughts and prayers go with you both! Cute card by the way, adorable image!

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  26. Lovely card. I hope all goes well for Shaun

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  27. Your reindeer look really cute. That's good news for Shaun. Hugs Mrs A. (Valery).

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  28. Hi Rachel, fantastic news, yes it will be a "roller coaster" ride but it will all be worth it to have your darling Shaun home with you and your beautiful daughters.
    Keep up that wonderful positive attitude.
    Love your great card.
    Hugs

    Patricia x

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  29. Fabulous news. i am sure you are all anxious for this to be done and your new lives together to start again. Yes, it will be new and different but you will all be together throughout this and that is the key. You have been his rock and know you will continue to be so...but once the surgery is done, that new path will be found together!

    Great card...I do not know how you find the time, girl. Well done you to accomplish this! Your image is a cutie!

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  30. A lovely card Rachel. Great news about Shaun, It will certainly be a roller coaster but he is on the list now.
    Hugs
    Mags
    x

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  31. I am really pulling for your family huni and I really hope was Hazel has said comes true for you and your beautiful family. Fab card, well done on getting one made and make sure you take some time out to just rest or reco-operate huni - it is going to take some time and you must be careful of looking after you too Karen x

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  32. You certainly are both on a rollercoaster of emotions right from the beginning of this difficult time, but it's amazing what strength can be found at times like this. Praying that it won't be long before Shaun gets the transplant he needs and so glad that things seem to be heading in the right direction for a good, successful outcome and, hopefully, many years ahead, even though it will involve further difficult times getting used to the necessary drugs etc. As for your card, Rachel, it is beautiful - so perfect for Rita's CCC challenge and I'm glad that you are able to absorb some time into a little crafting - it is so necessary to look after yourself as well as your girls and crafting is a good outlet. Lots of love and hugs. (Oh, and if you have time to link I'd love to see this card at CHNC challenge extra for October) xx

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  33. Eeeeeek! SO so so adorable! What a wonderful card, Rachel. Sending you mahoooosive hugs.

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Thankyou so much for leaving a comment - it really does mean a lot to me! Hugs Rachel xx